National guidance is based on a predominance of expert opinion due to the lack of high-quality studies informing the provision of coeliac disease follow up care. The traditional annual review, consisting of an individual appointment is already changing into a variety of different services.
Dr Yvonne Jeanes, Registered Dietitian at the University of Roehampton, is collating data for a comprehensive study* on the impact of annual review provisions for adults and children with coeliac disease.
This study aims to provide a comprehensive description of 'follow-up' and annual review provision for adults and children with coeliac disease across the UK, in the process it will highlight innovative practice. Reporting national data will provide a stronger voice for improving the management of coeliac disease and informing national guidelines. A key strength of this study will be presenting data from all geographical regions.
As part of this study, an online survey is being conducted 'Are annual reviews available to ADULTS or CHILDREN with coeliac disease in YOUR area?' and the study researchers would be grateful for your participation. For further details and to access to the survey, please visit:
https://roehamptonuniversity.onlinesurveys.ac.uk/coeliac_disease. The survey takes up to 30 minutes to complete, and you will be invited to take part in a prize draw (two £50 shopping vouchers of your choice to be won).
*This is a British Dietetic Association GET funded project, led by Dr Yvonne Jeanes RD, University of Roehampton & Education and Training Lead, BDA Gastroenterology group.