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Launch of the New Standards of Care for NTM Disease

NTM Network UK, an organisation dedicated to improving care for people living with non-tuberculous mycobacterial (NTM) disease, is launching the world’s first Standards of Care for this condition. This initiative aims to standardise and enhance the quality of care for NTM patients across the UK. The official launch will take place on 9th July 2024, at University College London Institute of Child Health.

NTM disease, which often affects individuals with underlying lung conditions such as bronchiectasis and chronic obstructive pulmonary disease (COPD), can lead to severe symptoms including persistent cough, shortness of breath, and significant weight loss. Dietitians play a critical role in managing the nutritional challenges faced by these patients, ensuring they maintain a healthy weight and receive the necessary nutrients to support their overall health and treatment.

The newly developed Standards of Care emphasise the vital role of dietitians in the treatment regimen for NTM disease. They advocate for consistent, high-quality nutritional support, including individualised dietary plans, regular nutritional assessments, and interventions to address malnutrition. These Standards highlight how integral dietitians are to a multidisciplinary team, collaborating with pharmacists, physiotherapists, and other healthcare professionals to provide comprehensive care.

The launch event will feature presentations from the authors of the Standards, discussions on the next steps for implementation, and networking opportunities. The event is free for healthcare professionals, with limited in-person spaces and unlimited online attendance. Additionally, a limited number of £50 travel bursaries are available to dietitians attending in person.

Event Details:

  • Date: 9th July 2024
  • Time: 13:00-17:00 BST
  • Location: University College London Institute of Child Health, 30 Guildford Street, London, WC1N 1EH
  • Cost: Free!
  • Register here.

Dietitians are encouraged to register early to secure their spot. This launch is a pivotal moment in setting a new standard for the care of NTM patients, and it highlights the essential role dietitians play in improving patient outcomes.

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